I received an e-mail from the Foundation for Ichthyosis and Related Skin Types, a patient organization devoted to helping people with ichthyosis, a condition in which the skin is dry and scaly (sometimes to an extraordinarily severe degree). The e-mail described how FIRST member Denver Hollingsworth (a 17-year-old high school senior) would be premiering his full length comedy movie “Dog Gone” on July 24 at East Duplin High School in Beulaville, N.C.
(Previews of his movie are on YouTube, and you can find them by searching “d3doggone”). Denver is using this premier as a fundraiser for FIRST, asking for a $2 entry donation, and his family is helping by selling baked goods provided by local churches.
Patient organizations like FIRST are a huge benefit to patients, providing social support, helping educate people about diseases, supporting research, advocating with government and insurers, and above all, empowering people like Denver and his family to make a difference. If you have a chronic condition, see if there’s a patient support group to help. You can find a list of reputable patient organizations at the DrScore.com Web site: http://www.drscore.com/advocacy/list.cfm). You may find that joining is one of the best things you’ve ever done for your health.