Patient advocacy groups are a huge help to patients. As a dermatologist who specializes in treating patients with psoriasis, I have had the opportunity to work extensively with the National Psoriasis Foundation over the past 20 years. Like so many other patient advocacy groups, the Psoriasis Foundation is a wonderful group of people dedicated to finding a cure, to educating patients, doctors and the public, and to advocating on behalf of patients.
The Foundation is creating a nationwide network of psoriasis activists. They will be organized through the National Psoriasis Foundation’s new community divisions. If you have psoriasis, I encourage you to check this out. It may be just what you are looking for. If you have some other chronic disease, there is likely to be a patient advocacy group for you, too. You can get a list of many of these at the DrScore.com website, http://www.drscore.com/advocacy/list.cfm.